Gideon’s Story

This piece is the third installment of our series looking at how babywearing and carrying is more than just being about the sling and how it can help families who have babies and children with additional needs. It is written by Rae, a Mum of Three. I have ‘known’ Rae for the majority of my own carrying journey as we are both members of the Natural Mamas forum and we shared our own pregnancy journey’s on its pregnancy sub forum. Here Rae will explain how using a sling helped her care for and bond with her third son. When Gideon was born he was diagnosed with Prader-Willi Syndrome or (PWS). 

At birth babies with PWS are usually very floppy (hypotonia) and this means they often cannot suck properly, have a weak cry and often do not have a full range of movement. It is a genetic disorder that is typically not diagnosed until baby has been born, although lack of movement in utero can be associated with the condition. There have been research studies undertaken to investigate if fetal ultrasound scanning can be used to help diagnose the condition but currently 99% of cases are diagnosed via genetic testing.

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