Gideon’s Story

This piece is the third installment of our series looking at how babywearing and carrying is more than just being about the sling and how it can help families who have babies and children with additional needs. It is written by Rae, a Mum of Three. I have ‘known’ Rae for the majority of my own carrying journey as we are both members of the Natural Mamas forum and we shared our own pregnancy journey’s on its pregnancy sub forum. Here Rae will explain how using a sling helped her care for and bond with her third son. When Gideon was born he was diagnosed with Prader-Willi Syndrome or (PWS). 

At birth babies with PWS are usually very floppy (hypotonia) and this means they often cannot suck properly, have a weak cry and often do not have a full range of movement. It is a genetic disorder that is typically not diagnosed until baby has been born, although lack of movement in utero can be associated with the condition. There have been research studies undertaken to investigate if fetal ultrasound scanning can be used to help diagnose the condition but currently 99% of cases are diagnosed via genetic testing.

Continue reading

How carrying helped one child with Juvenile Arthritis.

The next blog in our series of carrying babies and children with additional needs is written by Kirsty. I was lucky enough to meet Kirsty quite early on in her carrying journey as she visited the sling library for help and support. In 2014, her little girl was diagnosed with Juvenile Arthritis. born to carry.jpgSince Olivia’s diagnosis Kirsty has trained as a babywearing peer supporter with Born to Carry.

Juvenile Arthritis is an umbrella term that is used to describe “many autoimmune and inflammatory conditions or paediatric rheumatic diseases that can develop in children under the age of 16”(http://www.arthritis.org). Diagnosis can take several months.

In this blog Kirsty explains how babywearing has helped her care for Olivia as well as details of how she was diagnosed. Thank you for sharing your experiences Kirsty.

I will let Kirsty take over her story here: Continue reading

Carrying, when it means so much more than just the sling.

Babywearing sometimes gets a bad press. Comments from ‘helpful’ members of the public or family members with statements such as: “doesn’t it hurt” and “you’ll make a rod for you own back”, can make it extremely hard for parents to feel like they are making the correct decision. I have long since stopped listening but for new parents it can be hard. For many parents though, carrying their babies and toddlers is a matter of survival. Whether it simply allows them to meet the needs of their new baby and older children, gives them their hands back or just because it makes life easier. With a newborn with severe reflux and breathing difficulties, and a toddler to care for, slings saved my sanity.
Carrying our babies helps us to comfort them when they are upset, help us heal from traumatic birth experiences or postnatal depression, and build a closeness with our baby. The memories and shared experiences we gain while carrying our children create a bond that it would be difficult to replicate in any other way. This is why people often get emotionally attached to the slings that we use – they are not just a carrying device – they are memories too. There are families, though, where carrying their children has even more importance and significance, as their babies have additional needs. I am honoured that a number of them are willing to share their stories.
Each has a different journey, a child with a different need, but all find a place for a carrier in their lives. Our first guest writer is Emily. Emily is a mum of 3 beautiful boys from Sunderland and one of the women who inspired me to carry my first child. I was humbled when during her third pregnancy she contacted me for help after her baby was diagnosed with Unilateral Talipes. I will let Emily take over here:  Continue reading

Professional courtesy and sticking to what you are trained to teach.

I am extremely proud of my profession. I am a teacher by training and practice. Although I no longer teach in a classroom teaching teenagers I do spend my days teaching new parents how to carry their children comfortably and safely. I am a Babywearing Consultant. I have spent several thousand pounds training, I attend regular continuous professional development, I have insurance costs and pay subscriptions to our voluntary professional body. I know my area of expertise is slings and carriers, baby handling and sling safety. I know where to draw the line. I know I am not a doctor. I do not give medical advice. Despite being a breastfeeding mum and breastfeeding peer supporter I know I cannot diagnose feeding issues. I know when to refer to those who do know more than me. I know my professional boundaries.

When I see posts dismissing what I and many others do it is extremely hard not to be offended. Unfortunately, a recent social media post, and then subsequent dismissive comments, by a well-known breastfeeding expert has caused upset to my profession. 

If you are going to share material that is not within your area of expertise it is only correct that those of us who do work in that area identify flaws and sign post to sources of help. How many of us would start a reply with the words “Oh Please”? Does it seem respectful? Non-judgmental or professional? I think most of us would agree it doesn’t. It appears rude and disparaging; especially when you are commenting on something you only have your own experience of doing (and when you have openly criticized the role of peer support in your industry). I was especially taken aback by this. It was certainly not the way I thought a respected International Board Certified Lactation Consultant (IBCLC) would start a reply.

IBCLC are in a highly privileged position; their title is a protected one. This means you cannot simply start calling yourself one. It takes years of training and recertification every 5 years. However, IBCLC have not always existed. They began after a loan from La Leche League International in 1985 in a move to professionalize the industry. The Lactation Consultants of Great Britain has an even newer history forming in 1994. Nobody would say a IBCLC has less importance than a Midwife, or Physiotherapist or any health care professional – but each would agree that they all have their own area of expertise. It is not necessary to see an IBCLC to breastfeed, but if having difficulties then it has benefits. IBCLC are trained to assess a feed in detail; for example, look at the structure of the mouth, transfer of milk, tongue function, suck and swallow of the baby.  In same way that a midwife is trained to care for a mother in the antenatal period, and to help deliver her baby and care for the mother and newborn in first few weeks postnatally. Their professional expertise though does not stretch to caring for a 2 or 3-year-old. Here, a health visitor would be qualified to help. Knowing where our professional boundaries and personal experiences lie, is crucial.

Babywearing Consultants do not have the luxury of a protected title. Currently, anybody can choose to call themselves one. It is only in the last few years that there has been a growth in our number and an increase in training opportunities. We are experts in our field.  There are moves to create national and international standards and a regulation of our industry. A move I wholeheartedly applaud.babi-logo-transparent It is why I already subscribe to the British Association of Babywearing Consultants (BABI). Babywearing Consultants are attempting to professionalize our industry in the same way IBCLC did in 1985. Just because we are still in the process of doing so does not mean our knowledge or expertise is any more or less needed than that of IBCLCs: we simply have different areas of expertise.

Babywearing is a millennia old activity. For as long as humans have needed to move, we have needed to carry our young. Our babies are born helpless; unable to care for themselves and completely dependent on their parent or care giver to meet every need. By carrying our young we are able to respond quickly and efficiently to their ever changing needs. All cultures have a tradition of carrying their young; although the methods vary widely. This tradition though has disappeared in the western world.  Skills traditionally passed from mother to daughter have disappeared. It is only in the comparatively recent past that there has been a resurgence in its popularity. Babywearing, like breastfeeding, became unfashionable. It has taken the growth in breastfeeding support: from peer to peer support through to IBCLC, and international laws around infant formula marketing to help increase breastfeeding rates. The growth of sling libraries and Babywearing consultants in the last 4 years is unprecedented. The increasing understanding of ergonomic baby carriers and availability on the high street is making it much accessible.

Newborn and small babies, and those with underlying health conditions, are particularly at risk when being worn in a sling when it is worn incorrectly. This is why the TICKS guidelines were developed in 2010. They have become widely accepted as best practice for safe Babywearing. Unfortunately, if not followed (or supplied) there is a risk of a baby suffering from positional asphyxia. Any internet search about safe Babywearing will bring up stories of where things have gone wrong. As a Babywearing Consultant it is my job to help teach parents how to minimize those risks.  I work step by step, in detail, focusing on the small things which make a big difference: tightening, safety, positioning, comfort. DSCF2830This is why Babywearing consultants suggested that if you are going to back carry a small baby (something that can be achieved safely if you know what you are doing), that you do seek support, especially if you have limited knowledge of carrying your children in a sling. To suggest we are not necessary is to oversimplify the issue. No, it is not necessary to always have a consultation but there are times and places where it is advantageous. I have helped parents carry babies born extremely prematurely, with Development Dysplasia of the Hip (DDH), Talipes, multiple births, breathing difficulties, congenital heart defects, genetic disorders and hyper mobility to name just a few. As well as parents who just want some 1:1 support to get it right first time. 

 

Dismissing the role, myself, and other Babywearing Consultants, has the potential to be fatal. Please, give us some common courtesy as well as professional respect. We will stick to teaching how to carry babies safely, and will point out if there are weaknesses with technique that could be dangerous. Let other professionals stick to their specialisms. This way we can work together to support new parents for the benefit of them and their babies.

I’m A Babywearing Consultant

  • I am a Babywearing Consultant.

bottle feeding in r&rI know how to help families find a sling that matches their needs. I know how to explain why hysteria over high street carriers is simply that – hysteria. I know that one size doesn’t fit all, that individual families need individual carrying solutions. I’ve spent thousands (and continue to do so) training to be the best I can be.

But……

  • Nobody warned me that how the words in an email, Facebook message or a tiny thank you card would have me sobbing.
  • Nobody told me how I would feel when I discovered that by helping a mother carry her baby I had helped prevent the puerperal psychosis she had suffered after the birth of her first born. That it had allowed her to connect with her baby even before their birth.
  • Nobody taught me how not to fill with sadness when I overheard a mother tell her little girl that she was “too big for a carry”. When the same child was clearly scared of going into school and had her blankie for comfort.
  • Nobody told me how I would feel on knowing that my skills had calmed a babies reflux symptoms, let mum or dad have their hands back, allowed other children to be cared for, simply by finding a carrier for them to use.
  • Nobody told me that I would make life-long friends running a sling library but also make enemies and lose friends along the way.
  • Nobody taught me how to respond or keep from fits of laughter when I was asked “how old is your doll?”.
  • Nobody taught me how to explain that I am not on call 24/7, 365 days a year. Or how to explain that my family come first.
  • Nobody told me how honoured I would feel being asked for carrying advice from the mother who taught me to wrap, when her new baby was born with tallipes.

Michala and Harper

Being a Babywearing Consultant is an amazing job. It is different every day. It is not your run of the mill job. Each family has something about them that is different – even if they do want the same carrier. Most people don’t understand what I do. In my job I cannot judge. I cannot work to a set of fixed rules. I need to be flexible. There is no one type of parent who visits the sling library or for a consultation. I simply work with the families who have sought my help to find a carrying solution that works for them. I am honoured to be part of their lives, even just for a fleeting moment.

My clients are individuals. All with individual reasons to carry their babies (however big they are). It is their individual needs which make my job an amazing one to do. I have ‘colleagues’ around the country, they are also dedicated to helping people to carry their babies. Whether they are self-employed and trying to make a small living to help them raise their own families, or volunteers giving up their time to help others, it doesn’t matter. What matters is their dedication and desire to make carrying normal.

rachael

This blog was inspired by Vicky Smith of Taylored Fit Physiotherapy as the writing style was based on her recent ‘I am a physio’ blog and she kindly let me use it as a template for my piece.

Originally Published for Birth and Baby as a: Network Blogger: I’m A Babywearing Consultant